Individuals living with ostomies in small communities rely on friends, family, and health-care professionals for support, otherwise, they risk becoming isolated, which may affect quality-of-life.
Objective This study explored how individuals and their partners manage ostomy care and engage in daily activities.
Method This study utilised semi-structured interviews to explore perspectives of six participants living with an ostomy and two care partners in eastern Canada. Participants were recruited through a hospital ostomy service and community libraries. Adults with ostomies and their partners willing to articulate the journey of living with a stoma were recruited. All data were analysed using reflexive thematic analysis.
Results Participants were challenged to receive consistent support from an ostomy nurse. Partners were not included in education sessions. Participants quickly adopted an independent self-management approach, were resilient and resourceful. Consistent connection to the ostomy clinics and accessible face-to-face or online supports were lacking. Participants searched web-based platform for support to manage complications.
Conclusion Nurses specialised in ostomy care are in a position to support adults living with ostomies, and their care partners. Consistent, relevant education and supports should be offered by interprofessional teams.